We're in the home stretch! Jaxon has made so much progress this week! Although it seems we've been riding this roller coaster forever, it looks as though we're almost out of there! He is gaining weight and eating on his own. They've taken out all picc lines and tubes! He's on his own. Now it's his turn to show us he's ready to come home! He is such a trooper! Every moment that he's awake he's so happy to just listen to and watch all the chaos that's going on around him. Not even thinking of making a fuss about all of the gagdets and gizmos that are hooked to him. We're so blessed to have this little spirit of strength in our family!
April 14, 2008
No more tubes!!
Today Jaxon pulled out the tubes in his nose himself. I guess he was tired of having them in there. He's one tough little boy! He is doing so well, they have taken him off the morphine (finally) and tomorrow he'll be done with his antibiotics, and they started to feed him again today. Since he's eaten before he gets so excited when he knows that bottle is coming! They start him out with only 5 ml of milk and gradually work him up to about 60 ml. they want to make sure his little tummy can handle it. He is so much happier and alert lately that it's like he's a whole new baby, well, i'm sure he feels like a whole new baby !! We can't wait to get him home and finally get things going in a rhythm. We haven't had any sense of normalcy for about 20 days so it will nice to be able to stay at home with our family as a whole!!!
April 13, 2008
Baby Animal Days
Brock had so much fun at baby animal days!! I think that his favorite animals were the pigs and the bunnies! He didn't even seem to mind all of the people there. We are so grateful for this little boy! He brings us so much joy! We can't imagine our lives without him! We had so much fun! It was so nice to be outside instead of being cooped up in the house or the hospital. We can't wait for summer so we can take the boys outside to play!
April 2, 2008
Our Angel
This past week has felt like an eternity! Surreal! It all started on Wednesday night, we knew the moment that we'd been waiting for, for 9 months was finally here! Getting him here was as smooth as it could be. We held him and Ryan cut the cord, just like a proud daddy would! When the nurse checked him she knew immediately something wasn't right. ( thank goodness for her) They knew right away that he needed surgery to repair his (tracheoesophogeal fistula) TEF. And the only dr. in the state that does it was at primary childrens hospital. They rushed him by ambulance since the snow storm was
so bad, and his daddy followed as
close behind him as he could. They
hooked him up with tubes and IV's
galor! We waited and waited and
worried and worried until he finally
had his surgery saturday morning.
Everything went better than as
planned, and jaxon was back out
recovering. So far they've just been
keeping him sedated and as still as
possible so the repair can heal. When
i saw him yesterday he was slowly
coming off his sedation so he can start
breathing on his own, ( i can't wait to
get that stinkin ventillator out of him)
He was trying so hard to open his eyes
and focus on his mommy. For the first
time since wednesday night my heart
was so overfilled with joy! Hopefully
today they can take him off the
ventillator. Tomorrow they will do an
esophogram to make sure the surgery
didn't leave any leaks. If all goes well
then they can take the tubes out of his
nose and throat. Then we will
FINALLY be able to hold him and
give him all the kisses that we can!
Slowly they will start feeding him pedialyte
and breast milk. By the end of next week
we should be able to bring him home.
Brock can't wait to see him. He has
been wondering all this time why he
can't go back and see baby jaxon.
He says that he wants to kiss his
owies better! Brock has been such
a brave little boy through this
whole thing. He has been staying
with grandparents and is so excited
to see his little brother. He is going
to be the best big brother ever! We
can't wait to have our two little boys
home with us safe and sound.
We want everyone to know how
thankful we are for all of you! We
never realized how incredibly
supportive and amazing our family
and friends are. We feel so blessed!
so bad, and his daddy followed as
close behind him as he could. They
hooked him up with tubes and IV's
galor! We waited and waited and
worried and worried until he finally
had his surgery saturday morning.
Everything went better than as
planned, and jaxon was back out
recovering. So far they've just been
keeping him sedated and as still as
possible so the repair can heal. When
i saw him yesterday he was slowly
coming off his sedation so he can start
breathing on his own, ( i can't wait to
get that stinkin ventillator out of him)
He was trying so hard to open his eyes
and focus on his mommy. For the first
time since wednesday night my heart
was so overfilled with joy! Hopefully
today they can take him off the
ventillator. Tomorrow they will do an
esophogram to make sure the surgery
didn't leave any leaks. If all goes well
then they can take the tubes out of his
nose and throat. Then we will
FINALLY be able to hold him and
give him all the kisses that we can!
Slowly they will start feeding him pedialyte
and breast milk. By the end of next week
we should be able to bring him home.
Brock can't wait to see him. He has
been wondering all this time why he
can't go back and see baby jaxon.
He says that he wants to kiss his
owies better! Brock has been such
a brave little boy through this
whole thing. He has been staying
with grandparents and is so excited
to see his little brother. He is going
to be the best big brother ever! We
can't wait to have our two little boys
home with us safe and sound.
We want everyone to know how
thankful we are for all of you! We
never realized how incredibly
supportive and amazing our family
and friends are. We feel so blessed!
Subscribe to:
Posts (Atom)